Help take the sting out of Eddie's Problems

Edward James McDonald “ Eddie” was born 11th Dec 2017. Eddie has been diagnosed with Pontocerebellar Hypoplasia type 4, a rare neurodegenerative disorder and the only case of Pontocerebellar Hypoplasia in Tasmania. 

Eddie is non-verbal and has motor impairments (he is fed through a gastric tube and cannot use his hands). He will never walk and so a wheelchair is a big part of his life. As he gets older, and heavier, he will need to stay in his chair whilst travelling as he will become too big to lift in and out of a car seat. As such, his mother (a single parent) will need a specially modified vehicle with a wheelchair hoist. 

Eddie's Grandfather, Colin Dean, is a keen Vespa fan, and has started the initiative, "Ride for Eddie". With inspiration from Vespa (which means wasp in Italian), a group of passionate fundraisers will be riding around Tasmania in November 2021 on Vespas, wrapped in yellow to look like wasps. The aim will be to drive awareness of this very rare condition and raise funds for a van for Eddie's family. 

"Ride for Eddie" will be launched on Thursday 8th April 2021, at 11am in Salamanca Square. There will be events held at various times throughout the year featuring the Vespas in the lead up to the main ride in November.  Popular Tasmanian singing group CROON will perform pop-up concerts at some of these locations. 

Variety Tasmania has partnered with "Ride for Eddie" in order to assist this community fundraising effort and help give Eddie a Fair-Go. You can help Eddie by donating today. All donations over $2 are tax-deductible. 

Help take the sting out of living with PCH4 and give Eddie the chance of having a full life.

Extreme Make-Over Vespa Style

A huge thank you to all the corporate and individual supporters of Ride for Eddie

A big thank you to our Supporters

The real heroes who are kindly helping us achieve our goal

$21

Helen Britton

$104

Debra Dean

$314

John X Presents

Donations from Big Band show Wrest Point Showroom and Mappie.

$52

Allison Farrow

I'm so proud to know you, lads. xx

$21

Hannah Matthews

$100

Tony Evans

$21

Toni W

$26

Debbie Claridge

Good luck Eddie !!!!

$104

Maree Evans

$52

Jess Windle

$50

Anonymous

$104

Rachel Shephard

$10

Rosalie Jones

$104

Lesley Somerville

$20

Roz Pearson

All the best Eddie and Col.

$52

Tony And Julie Fox

$31

Susan Abbott

$31

Merridy Eastman

XX

$21

Sonia Grierson

All the best to all involved in the ride.

$52

Sean Colrain

$52

Sharon Llewellyn

$515

Ben Armitage

Ride on lads and get the little man a van!

$21

Nerissa & Rod

$1,000

Julie Driessen

$52

Family Sallese

Sending all our love, compassion, prayers and understanding for your journey with gorgeous little Eddie, our dear friends xxx 😘🙏

$100

Holly & Dax

Go team Eddie 😘

$47

Athena

Safe travels Colin from a fellow VCOM member

$52

Jan Sward

Many hugs and kisses xx

$104

Marshall Family Qld

$52

Andrea Street

Best wishes

$104

Sarah Warner

Good luck x

$104

Lisa Waller

Much love

$52

Amy Crosby

Best wishes Eddie and family!

$21

Anonymous

$5.02k

Muscular Dystrophy Tasmania

Dear Eddie and family, please accept this contribution from everyone involved at MDT including our committee, volunteers, and our raft of amazing supporters. We hope our contribution will encourage others to dig deep and help make this journey as easy as it possibly can be.

$21

Paula Brown

$52

Russ And Kym Lawrence

Best wishes to all the family.

$21

Adelaide Reisz

$52

Wayne Flanagan

Good luck to you all, I hope the ride is a safe success

$104

Heather Burr

Thinking of Eddie and your family with love

$26

Kathy Spencer

Well done everyone x

$104

Frank Barta

$52

Mary Jones

$50

Penny West

Happy to help this gorgeous family x

$209

Elise Archer

Best wishes to Eddie.

$104

Cheryle And Robert Bertoz

Can’t think of a better cause. Lots and lots of love x

$261

Ruth Arkins

$26

Michael And Kathy Preston

Lots of love to all

$21

Sonia Baldock

$104

Karen Westwood

Great idea. All the best!

$55

Colin Dean

This is money collected at the launch in Salamanca.

$52

Kathryn Direen

$21

Denis Simms

$52

Mandy Lowrie

Amazing Colin & friends! <3

$52

Kate Mifsud

$31

Annette Dlugogorski

Good luck!! I hope Eddie and Jess can get those new wheels 🚌 xx

$52

Carol

Good luck with your fundraising, hope you reach your goal! Travel safe on thos scooters ❤️

$52

Cheryl Sward

What a fantastic cause, all my love xx

$20

Renee Browning

Good luck Jess you do a amazing job and a Hi to Eddie and the kids!

$104

Jan Dixon

Best of luck to all x

$104

Ros Peck

With love and admiration of you all 💖

$52

Nat Belbin

You guys are super amazing, all the best in hitting your goal & big hugs to the Gorgeous Eddie 💙 Much love to you all X

$52

Moya

Ride Eddie ride!

$31

Marita & Rex Bishop

Good luck to you all

$31

Jennifer Ayers

With. Love

$20

Anonymous

$52

Diane Cerritelli

What a beautiful boy

$52

Sam, Katie, Olive And Isla

We hope Jess and Eadie get the new ride they need. And what a superstar Grandad Colin is.

$30

Mel Lennard

All the very best!

$31

Michael Dalla Fontana

What a fantastic fundraiserconcept and here’s to safe and fun times riding your Vespas around Tassie

$21

Anonymous

$52

Rowena

All the best Eddie!!

$52

David Pidd

$104

Ade Elliott

Hi Eddie, I hope the new van makes life easier for Mum. All the best

$52

Betty Shanks

Good luck to Eddie and the family. xx

$31

Martyn Family

$31

Lucy Breaden

$52

Sam, Elle, Ivy And Billie Xx

So proud of you all. You've got this.

$52

Julia Newman

All the very best, bless his little heart💝🙏

$100

Gae Williams

With love from Gae & Barb

$52

Kirby

Couldn’t think of a more deserving cause. Hope you make your goal and get the van 😊

$104

Craig & Helen Lucas

$104

Rob & Ailsa Nicholls

All the best Eddie. XO

$104

Sharon Reibel

$261

S&j Chopping

$104

Anonymous

All the very best with the fundraising effort Love you guys xx

$500

Susan & Garry Mchenry

What a great thing you are doing. We are so happy to be able to help

$10

Shane Hill

Good luck 👏🏻

$104

Deb Wilcox

$104

Munting Family

Good luck and best wishes

$52

Jill Dunham

I Just saw this story on 7 network news and wish you success with your endeavour to raise money for eddies van. I don’t know your family but Eddie looks like he is an amazing little boy. All the best to you.👏

$42

Anonymous

Wishing you all the best.

$31

Chelsie De Bomford

We support you Eddie and wish you all the best for your future.

$52

Fiona Young

$104

Lyndel & Pete

$10

Alison Fox

$104

Anonymous

$21

Samantha Maxwell

Just saw Eddie and family on the news <3 jumped straight online o donate :)

$78

Tracie Acreman

$104

Wiggins Family

We hope this helps reach your goal for Eddie 🤞